Monday, May 30, 2016

Making Babies: On Infertility

I have a scan on Tuesday. I am, as usual, a bit nervous. My mind races with scenarios that get more and more optimistic, and when reality comes we deflate like souffles. The news could be objectively good, but we are impatient people.

Thinking about the doctor today I remembered a conversation we had early on. I can still clearly see him sigh, hesitate, and brace himself.

"There is a high chance," *dramatic pause* "that you will be infertile after treatment." I imagine that he saw a young, 30-something with a husband and assumed this would be a blow. Instead, I threw him off with a breezy "That's ok. What else?"

To me, the news wasn't as devastating as it might be to another woman. Since I was a child, I knew I was not destined to be a mother. It was a decision I had already made a long time before my epilepsy, and now cancer, put in the final nails on that decision. And now, since I had no clear idea of what my future was, the prospect of a child would be almost irresponsible. But I feel a strange relief.

Why? Because people are bizarrely invested in other peoples wombs. I used to get the "When are you having kids?" a lot as a young newly married woman. Telling people I was not interested was more trouble than you imagined. "You'll change your mind." "Children are a blessing!" and the most offensive: "I will pray to God that you change your mind" (I am sure he has better things to do!). It was an uncomfortable and circular conversation.

I feel odd relief in being able to just end the conversation with an "I can't". Although, this makes me think of the women that would grieve this. I wonder, how would I feel if I had been someone who wanted children? The questions and assumptions I have gotten as a child-free person are intrusive, rude, and potentially painful. And this was an active choice I made, so I can have a pretty thick skin on the matter. What if this isn't a choice? I would probably punch a lot of people in the face.

I resent the fact that women are painted as somehow "less than" if we are not able to have a child. I resent that this is a measure of being a "true woman". I resent that I am somehow "selfish". I have been more a mother to my brother than lots of woman who have been able to have their own biological off-spring. I resent that strangers feel they can argue with me on this point as if it were their evolutionary imperative. I resent that those who have not made this choice, as I had, are put through this same crap, and worst.

Will I ever miss my chemo-fried ovaries? In the long run, I don't know. I have, in some ways, made a Faustian bargain. I get to see another day in exchange for my hands (and my art), any semblance of  comfort, some bits of sanity, and ultimately, my fertility as well. At least I can be content with being a wonderful aunt to someone. But...that was my choice and nature just happened to align with it...but choice is everything.

So next time you go to ask a coworker, a stranger, etc. "Are you having more than 1?" or "Why haven't you had one yet? Children are joyous and beautiful!" I would implore you to shut your mouth unless you clearly know this line of questioning is welcomed by that person. Otherwise, your words could be, at best, annoying, and at worst, extremely painful.

Saturday, May 7, 2016

A Tiny Boat in a Vast Ocean

Sometimes life feels like your out in the middle of an ocean during a storm, just you and your tiny rowboat...and there just went one of the oars. "At least" you think to yourself " I have the other one to knock myself unconscious with." And just like that, the ocean swallows up the other one.

In my case right now its disease, but the ocean is many things to many people. It is financial instability, uncertainty, abuse, it is the limitations of racism and sexism, bigotry, it is fractured families and personal stagnation. We all find ourselves in vast oceans from time to time. And it might seem like a pond to your neighbor, but when your inside it the horizons disappear and you just see water all around.

But, I do find a curious thing happening to me. As the ocean tides climb and toss me from wave to wave, I can still find an odd comfort. I find joy in the tiny cracks of my vessel. The waters might be vast, the sky might be black, but me and my tiny boat endure. I have become proud of it.

I am proud that my body has taken so much and still endured. Last Saturday, I got up and danced at a wedding. I wobble more in my heels now, but I can still do the Twist like no ones business. I am proud that I can still work pretty much full time and contribute. I am lucky to have relative financial stability now that we both work full time- more than I have ever had  in my adult life, even with the medical bills. I am grateful to have the family and friends I do, and discover I have more of both along the way. I have a partner that I know with all my heart is meant for me. All this overjoys me. All this can overshadow the difficulties and make those stupid clumps of cells in me look pretty insignificant in the grand scheme.

So next time your alone in the ocean, look at your tiny vessel and admire it's fine construction. You may be broke, but you have the skills to forge ahead. You may have been hurt, but you are strong enough to heal. You have family, or friends, or the confidence, the skills, and fortitude to help you brave the night. You have perspectives, strengths, and privileges in places you don't even realize.

Floating out there in the storming darkness, you might just spot another tiny oar-less boat out in the distance. You might see a girl, soaked to the bone, and wonder why she is smiling...

Because, my friend, this storm can rage all it wants...but it can't blot out the sun that lives inside me.